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моя дочь не чувствует боли
не чувствует боли
мама
быть мамой
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дети
семья
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  • ruRussian
Download
00:00:02
hello hello to him with a single start
00:00:13
everyone hello my name is Alina my
00:00:16
seven year old daughter Amelia and she has autism
00:00:19
high tissue extensibility
00:00:20
joint instability and impaired
00:00:23
sensitivity to pain I had an
00:00:24
emergency caesarean section at forty-two weeks
00:00:26
she was born in the dark in the waters, she didn’t
00:00:30
scream right away, what a blessing your
00:00:33
baby is constantly sleeping, rejoice, well, I
00:00:37
was happy, I wasn’t happy for long, I realized
00:00:39
that something was wrong with the child almost
00:00:41
immediately, probably on the seventh day after her
00:00:45
birth, my baby was screaming constantly
00:00:48
around the clock, the
00:00:49
doctor suggested that it was possible that she was
00:00:51
very early my stomach began to hurt, then I
00:00:54
switched from breastfeeding to
00:00:56
formula, we think it was possible that
00:00:59
she wasn’t eating enough, so she screams, nothing
00:01:02
has changed at all
00:01:18
not anything, she just woke up and
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crashed into the bed, she gnawed wood,
00:01:24
she gnawed metal,
00:01:25
she gnawed her fingers, she gnawed her lips and
00:01:29
cheeks, it’s very difficult to demonstrate, but if
00:01:32
you try close you can show about her there is
00:01:33
no piece of tongue at all when she ate her
00:01:36
tongue, it was not completely like an accordion
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it got to the point where the
00:01:41
tissue died off at the tip, it became black
00:01:43
burgundy and then it just dried up and
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fell off, it was impossible to explain what it was
00:01:48
doing, it was considered an
00:01:50
infection, we will give it our all, they tell us what are you
00:01:52
doing here, go to your place of residence we
00:01:54
come to the clinic, we come to the clinic, we
00:01:56
don’t know what to do with you, go to the
00:01:58
hospital and this is such a cycle,
00:02:00
to the point that children go to the dentist,
00:02:02
this is their problem, let them prescribe something for you,
00:02:05
hello, hello, wave your hand,
00:02:10
hello, what’s up and let’s go to Ust-Kut,
00:02:20
that is, you for her, let’s say,
00:02:23
sensory noise from the outside,
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I don’t know how much she understands you, it’s
00:02:27
very difficult to determine because she
00:02:29
can’t answer such questions, but
00:02:33
partly she highlights something for herself
00:02:35
if these are some familiar words, plus she
00:02:38
needs to get used to you in principle, if
00:02:40
she were in an unfamiliar environment, she
00:02:42
might not have noticed you with
00:02:44
a camera because she would have been interested in everything
00:02:46
around her, but it’s not specific
00:02:48
that she had problems with perception, well,
00:02:52
there were problems, but I already began to clearly
00:02:54
feel them, I understood this year I remember
00:02:56
such an incident on the slipway of the battery, the whole
00:02:59
thing was working then that the house was terribly
00:03:01
cold and she just came up, well,
00:03:04
the batteries weren’t hot, that’s putting it mildly,
00:03:07
she held the heaters, her
00:03:10
hands were literally boiling, the skin remained on them, she
00:03:14
took it off, she just lost it, you understand. for a
00:03:17
healthy person, I’ll just
00:03:19
pinch you a little harder than usual, but here a
00:03:22
person with neta has completely skin if
00:03:24
now it was possible to get this wonderful
00:03:26
card when I wrote in a year and one I
00:03:29
won’t say in which institution they
00:03:32
wrote her the presence of bad habits,
00:03:34
that is, this is what what happened to the child
00:03:36
was the presence of bad
00:03:38
habits,
00:03:39
I began to climb generally in various
00:03:41
groups, search, I realized that at the level of
00:03:45
rb at the level of some kind of something else in Russian
00:03:48
medicine, I could not find anything similar,
00:03:51
and then I found a wonderful
00:03:53
group,
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as I remember now it was called gift of pain
00:03:59
association was sent, it was
00:04:02
general American, it was said
00:04:04
that there are children who have complete
00:04:08
insensitivity to pain and adult
00:04:11
children, and so on, in America, by the way, there is an
00:04:13
analysis that shows the degree of
00:04:15
sensory
00:04:17
insensitivity of human tissues of the 3rd
00:04:21
degree I understood that in 1 tank people have completely
00:04:25
intact intellect, and I saw that they
00:04:28
have mental disorders, that very
00:04:30
last stage, where children don’t even
00:04:32
live to see their age, they destroy themselves greatly
00:04:34
because they have severe
00:04:36
mental disorders and at the same time
00:04:39
they have sensitivity and plus they have a very
00:04:41
severe degree of age she had 16 teeth
00:04:46
in a year and to drink and took away seven, she had
00:04:50
all of their exhibitions,
00:04:51
she ate for herself a countable amount of
00:04:56
this internal cavity for almost a year, she just
00:04:59
literally wanted herself 24/7,
00:05:01
she woke up, there was blood all over her pillow,
00:05:04
all the jackets went out into the street
00:05:06
the overalls were absolutely covered in blood,
00:05:08
imagine the feeling of a young
00:05:10
mother traveling with her baby, but the fact that she
00:05:12
can’t calm down your child is
00:05:15
bleeding and doesn’t know what to do, the doctors don’t
00:05:17
give any answers and one child
00:05:19
is restless but buy it, well, you’re on
00:05:22
the tanks, give me something else Somehow, 1 fracture did
00:05:24
not appear in seven months, it was at home,
00:05:27
we took her out of the crib, took off her bodysuit and
00:05:31
realized that there was something wrong with her arm, I
00:05:35
called an ambulance, we went to the
00:05:37
traumatology center and that’s where we
00:05:41
examined her and took a picture and they said
00:05:44
that she had a broken arm, after that they
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began
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again to attack her parents about
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how we allowed the fracture to happen and how
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to explain to people that we ourselves don’t know
00:05:57
where I won’t break it, she woke up and
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she had a triple fracture of her arm,
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triple in three places and then it became everything is
00:06:04
of course more fun, these fractures didn’t
00:06:07
heal and then we walked around in a cast for
00:06:09
about five months. I carried her in my arms
00:06:13
before I was pumped up and prepared to eat because
00:06:16
she was hyperactive, that’s what you
00:06:17
see now, she’s already a calm
00:06:19
person and she was very
00:06:21
hyperactive. and it was to hold it, that is, it’s cool,
00:06:23
we can turn it absolute, but she’ll
00:06:28
probably turn it on, try
00:06:30
to turn it off, and if she agrees, but she
00:06:33
may not agree right away, I say, she may
00:06:36
not agree,
00:06:41
so, so, say, I didn’t understand this, what
00:06:45
will it tell me here, you’re giving out this,
00:06:55
you’re giving out, that is, that What am I telling you about the fact that I’m
00:06:57
cooking something that she needs clearly, she clearly
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knows, she looks and watches the call at the
00:07:01
computer, what are you doing there and God forbid you
00:07:04
tweak it and the sound from the bottom, as I
00:07:06
remember now, the root in the 6th
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hospital told the doctor at that time I've been
00:07:12
searching for as long as I've been for 70 years, this is the first
00:07:16
time I've seen something like this, it's burning with a strange fracture,
00:07:18
she says the child uses his arm like a
00:07:20
healthy one, but he didn't know at that moment
00:07:22
that he and I were still in the conditions of
00:07:23
the hip, and soon, so there
00:07:25
were also surprises
00:07:26
when she had it a bone cracked in her
00:07:31
legs, she was about two years old at that
00:07:34
time, there was absolutely no reaction,
00:07:39
I had already given birth to my second child, my
00:07:42
son was a month old, and
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then he got an injury that
00:07:48
became a problem for many years,
00:07:53
the child was absolutely a walking, jumping, running person from birth.
00:08:01
lying down, but I ran after her to the kitchen, I
00:08:03
saw that there was something wrong with him, she was walking,
00:08:05
falling, walking for years, I know my
00:08:08
child, who, but forgive me,
00:08:11
got his teeth out of his skin, ate himself, was already four
00:08:14
times, speaking with a fracture, and here
00:08:16
because she sprained her knee, she can’t
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walk,
00:08:19
well, that is, these are some amazing
00:08:20
things, I called the cortex again and they
00:08:23
told me by tactile sensations when
00:08:26
they took the femoral part, perhaps you have a child,
00:08:29
warrior Petra, I have an autistic child in my arms
00:08:32
with a dislocated hip at home, small I’m
00:08:35
just standing on the street and I don’t know where to
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go now she doesn’t gnaw,
00:08:39
she doesn’t gnaw at her cheeks, she doesn’t gnaw at her hands, but
00:08:41
this past year she
00:08:47
started having a problem, she started taking the skin
00:08:50
on herself, that is, if you just
00:08:52
show it under your T-shirt and even what happened
00:08:58
relatively recently on her face, spots on her
00:09:01
forehead, ice here on her forehead, it’s
00:09:04
all torn off, I walk around, no
00:09:07
reaction at all, no reaction at all,
00:09:10
she started to make moles or skin before
00:09:12
that, she lifted her hair,
00:09:14
stopped pulling her hair, think, thank God she’s
00:09:16
not pulling her hair the skin has started, that is, and is
00:09:19
constantly changing somehow chaotically and ta
00:09:21
ta ta this and you think this is the lake
00:09:24
today, a little panic tyrant,
00:09:28
throw away no choose,
00:09:31
throw away choose that she was autistic it
00:09:41
was clear clearly already shower plan of
00:09:46
the year officially her autism is
00:09:49
just as official
00:09:52
permanent disability diagnosis since the age of five, my
00:09:56
child, in principle, can speak; it’s
00:09:58
not that she doesn’t speak; the point is that
00:10:00
she has no
00:10:03
motivation to communicate with us; she communicates
00:10:06
only according to her needs; that is,
00:10:09
if she needs Masha, porridge will come and
00:10:11
say
00:10:12
Mashuka is it better, or am I really irritating her with something
00:10:16
and Elena doesn’t want this to
00:10:19
stay next to her or force her or do
00:10:21
something, she can tell me these,
00:10:24
push me with her hand, tell me to go,
00:10:29
and she herself
00:10:44
[music]
00:10:49
will take over thank you,
00:10:52
forget about you I’ll say more that at three
00:11:06
and a half years old she couldn’t
00:11:09
hold a spoon, what can she talk about, she
00:11:12
couldn’t concentrate to put a
00:11:14
simple ring on a pyramid, I’m
00:11:17
not telling you about creating a
00:11:18
sequence even from big to
00:11:21
small, she couldn’t enter the doorway,
00:11:24
she moved away from everything the corners of the
00:11:26
walls, she put the pots with her head and
00:11:29
she didn’t notice the objects of animals and people,
00:11:32
she was constantly in some
00:11:34
kind of foggy state, and where, well,
00:11:38
that is, it was comfortable at that
00:11:41
moment, I couldn’t, in that state,
00:11:43
she had
00:11:45
no one to leave with I’ll translate for you an
00:11:48
elementary simple example that,
00:11:50
well, I’ll remember for the rest of my
00:11:53
life. I was at that moment in the fifth
00:11:57
month of pregnancy. I took
00:11:59
tests again. I went to get tested. My
00:12:02
mother called me, Alina was crying all over me, and when she was about to
00:12:04
go to bed, she was hysterical for something and just
00:12:06
came back as a sincere
00:12:09
confession, such nonsense,
00:12:11
how can you beware of this when something
00:12:13
really happens to a child,
00:12:15
well, this is what I
00:12:18
’ve encountered and I’ve never encountered this, I’m a
00:12:21
teacher by profession,
00:12:22
I worked before in a boarding school and I
00:12:25
saw especially children I them I see this is not the
00:12:27
first time in my life I wasn’t shocked
00:12:29
that I was a special child, I didn’t fall
00:12:31
into depression, I walked away from myself, I didn’t ask
00:12:34
questions about why this was for me, why this was for me
00:12:36
or anything else, I accepted that I was
00:12:39
such a child, he was like the
00:12:41
next step, what I need to do
00:12:44
to help her so that
00:12:45
she is alive more or less
00:12:48
healthy, that is, so that we are not
00:12:51
talking now about the development of the norm so
00:12:53
that she does not destroy herself,
00:12:56
I got up with this thought,
00:12:58
got up, ate, slept, and so on I won’t lie
00:13:01
now and say that I
00:13:03
woke up here with such a smile, I was
00:13:05
fine and everything was great, no one had anything like this, there
00:13:08
were different periods, there were periods
00:13:11
when I cried for days, when I was alone at
00:13:15
home, mostly and
00:13:17
so I was always at home and when who - then I
00:13:19
came home, I washed my face faster,
00:13:21
put on some cosmetics and
00:13:23
something else, I’m doing well, 7th class Galinka,
00:13:26
well done and also limit where his so everything is
00:13:28
fine, I go to bed at night when my child has
00:13:31
n’t slept for days, he’s screaming from himself, he’s
00:13:34
injured the second child, I can’t
00:13:37
go out into the streets and the covers were stacked with
00:13:38
a blanket and just sobbed, well, that is, this is an
00:13:42
escape from some kind of my own
00:13:45
powerlessness, I got up in the morning and looked as
00:13:48
if nothing had ever happened, now I have
00:13:50
n’t cried for a long time about questions of attitude towards
00:13:54
children, help and education I
00:13:57
have no complaints about my husband at all, as a
00:14:00
dad, he is an absolutely good, responsible
00:14:03
person, yes, he works until her life,
00:14:10
how I see life for my turn in
00:14:13
20 years,
00:14:14
myth or reality, do you want to know
00:14:17
the reality, I am a realist, again, I will repeat
00:14:20
this 1000 times her life 20 years later I’m
00:14:25
lying next to me I’m a realist I believe I’m dreaming
00:14:30
like all parents we won’t take
00:14:33
this away but still I understand what she
00:14:36
needs I do
00:14:37
n’t need help I’m creating it all objectively
00:14:39
and it doesn’t scare me at all
00:14:42
absolutely absolutely doesn’t scare me at all
00:14:45
being a mother of a special child is the same
00:14:48
as being a mother of an ordinary child, just
00:14:51
a little different for me, it’s just
00:14:54
motherhood, it’s not some kind of merit
00:14:57
or some kind of burden, yes, it’s a different
00:15:01
life, but nothing more I would say,
00:15:06
we just love our own children are
00:15:08
not special, and well, that is,
00:15:11
I have both a special child and an ordinary one,
00:15:14
I love them absolutely equally

Description:

На 42-й неделе беременности Алине сделали экстренное кесарево сечение. Так родилась Анелия. Спустя несколько месяцев Алина начала замечать странности: дочь грызла кровать, сосала пальцы до крови а однажды проснулась с переломом руки, но никак не отреагировала на боль. Со временем стало понятно, что у Анелии аутизм, а еще она совершенно не чувствует боли. Каково это, воспитывать ребенка, который с трудом общается с окружающим миром? Это история Алины и ее дочери. https://vk.com/yarosh1989 Это проект "Быть мамой", где мы рассказываем о женщинах, жизнь которых отличается от большинства. Моя дочь не чувствует боли: Алина | Быть мамой ➞ https://www.youtube.com/watch?v=TapHynv527E Новые видео каждый день – подписывайтесь! ➞ https://www.youtube.com/channel/UCIb5NYGmHvWQYqMFVrNS5NA?sub_confirmation=1 ============================================ WEBSITE: https://www.tut.by VK: https://vk.com/tutby Instagram: https://www.facebook.com/unsupportedbrowser Facebook: https://www.facebook.com/unsupportedbrowser Twitter: https://twitter.com/tutby Если вам нравится видео — не забудьте поставить лайк и подписаться на канал, это поможет ролику распространиться. Спасибо!

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  • UDL Lite is a really convenient way to access a website from your mobile device. With its help, you can easily download videos directly to your smartphone.

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  • The best quality formats are FullHD (1080p), 2K (1440p), 4K (2160p) and 8K (4320p). The higher the resolution of your screen, the higher the video quality should be. However, there are other factors to consider: download speed, amount of free space, and device performance during playback.

mobile menu iconWhy does my computer freeze when loading a "Моя дочь не чувствует боли: Алина | Быть мамой" video?mobile menu icon

  • The browser/computer should not freeze completely! If this happens, please report it with a link to the video. Sometimes videos cannot be downloaded directly in a suitable format, so we have added the ability to convert the file to the desired format. In some cases, this process may actively use computer resources.

mobile menu iconHow can I download "Моя дочь не чувствует боли: Алина | Быть мамой" video to my phone?mobile menu icon

  • You can download a video to your smartphone using the website or the PWA application UDL Lite. It is also possible to send a download link via QR code using the UDL Helper extension.

mobile menu iconHow can I download an audio track (music) to MP3 "Моя дочь не чувствует боли: Алина | Быть мамой"?mobile menu icon

  • The most convenient way is to use the UDL Client program, which supports converting video to MP3 format. In some cases, MP3 can also be downloaded through the UDL Helper extension.

mobile menu iconHow can I save a frame from a video "Моя дочь не чувствует боли: Алина | Быть мамой"?mobile menu icon

  • This feature is available in the UDL Helper extension. Make sure that "Show the video snapshot button" is checked in the settings. A camera icon should appear in the lower right corner of the player to the left of the "Settings" icon. When you click on it, the current frame from the video will be saved to your computer in JPEG format.

mobile menu iconWhat's the price of all this stuff?mobile menu icon

  • It costs nothing. Our services are absolutely free for all users. There are no PRO subscriptions, no restrictions on the number or maximum length of downloaded videos.